Community Support is Everything

Outpouring of support for young W.Va. man battling brain cancer

Elaine Blaisdell

OAKLAND — The outpouring of emotional and monetary support from the community for 20-year-old Dylan Jones, who has been battling stage 4 glioblastoma brain cancer, has been tremendous, according to his mother Erika Graham of Oakland.

“I have been floored by the response from the community,” Graham said. “The support from Garrett County alone has been tremendous, every business has posted signs asking for prayer for him. I’ve been amazed by the support of the community, it has been really great. People all over the United States have said they are praying.”

Jones, described by others as a guy who would do anything for anybody, was diagnosed with glioblastoma in December 2012. He underwent surgery at Ruby Memorial Hospital in Morgantown, W.Va., a year ago, then underwent chemotherapy and radiation at Preston Robert Tisch Brain Tumor Center at Duke University in Durham, N.C.

While receiving treatment at Duke, Jones’ insurance coverage was exhausted and costs weren’t covered, Graham said. In October, Jones was doing great and there was no sign of the cancer, according to his mother, but around Thanksgiving he started feeling tingling and numbness on his right side. Following an MRI, it was confirmed that the brain tumor had returned and that cancer cells had spread to other areas of the brain.

“The doctors decided to change his chemotherapy and medicine to try to shrink the tumor but his body didn’t respond to any of the treatments,” said Graham. “He got home last Tuesday and we decided we have exhausted all treatment options. We are now doing alternative treatments now. We are praying and hoping for the best.”

Numerous fundraisers have been held in both Oakland and Keyser, W.Va., to help with medical expenses. Money from fundraisers currently being held will go toward the holistic treatments Jones is undergoing. Insurance doesn’t cover the costs of the alternative treatments, which cost $2,800 a month, Graham said.

“It is so very important that he doesn’t miss any dosages so we have to make sure we always have the money on hand to order what we need when we need it,” wrote Graham on the Dylan Jones Cancer Support Group Facebook page. “He is also on a very strict diet so we can only feed him organic fruits and vegetables.”

The biggest fundraiser thus far has been Dollars for Dylan, which is set up at the Wepco Federal Credit Union in Oakland. GiveForward, another fundraiser, has raised $2,915.

On the GiveForward blog, Graham said she is not giving up and asks people to do the same.

“Even though our hearts are crushed we are not giving up,” wrote Graham. “The pain I’m feeling right now as my heart aches for my son is unbearable but I’m determined not to lose hope. I don’t know what God’s plan is here but I sure hope it’s to prove he can make miracles happen.”

Jones and the news of his fight against brain cancer has gone viral on social media, so much so that #DylanJonesFight started trending on Twitter, according to Graham. Celebrities like country music singer Wynonna Judd and Duck Dynasty have retweeted #DylanJonesFight and country music artist Colt Ford has stated on Twitter that he is praying for Jones.

Other fundraisers include Thirty One, Pampered Chef, hoagie, T-shirt and window sticker sales, as well as cash bash and band benefits. A campaign on Booster.com that is selling T-shirts has garnered $490.

Basketball players from Union, Keyser and Frankfort high schools recently wore gray, which is the color for brain cancer awareness, during their respective games in support of Jones.

The Kenny Jones Band of Keyser played at Schmitt’s Saloon in Morgantown earlier this month and raised $247 for Jones, according to their Facebook page. The band has been holding various fundraisers for Jones throughout the year.

Upcoming fundraisers include a bake sale at 7-Eleven in Oakland Saturday starting at 8 a.m. and band benefit on Feb. 8 at the Black Bear Tavern and Restaurant in McHenry from 7 p.m. until closing. The Dylan Jones Cancer Fund Facebook page, which has 3,260 members thus far, has updates on additional upcoming fundraisers.

Jones is a 2011 graduate of Union High School and following graduation he worked on his grandfather, Roy Jones’ farm in Elk Garden, according to Graham.

Jones is the son of Craig Jones of Mount Storm, the stepson of Jeremy Graham of Oakland, the brother of Brianna and Wesley Jones both of Mount Storm, the great grandson of floyd “Buck” Jones of Elk Garden, the grandson of Roy and Priscilla Jones of Elk Garden and Ramona and James Hanlin of Mount Storm.

Anyone wishing to send cards or donate may send them to the The Dylan Jones Cancer Fund, 3976 Mayhew Inn Road, Oakland MD, 21550. Donations can also be made on the GiveForward website at https://www.giveforward.com/fundraiser/4yk3/dylan-jones-cancer-fund  

Source: http://www.times-news.com/local/x1724065386/Outpouring-of-support-for-young-Oakland-man-battling-brain-cancer

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A Former Teacher with Brain Cancer Talks Priorities

After A Cancer Diagnosis, Lessons In Priorities

Teaching high school English came naturally to David Menasche but a terminal brain cancer diagnosis forced him to leave the classroom. So he visited some of his former students to see what impact he’s had on them. He writes about the experience in his forthcoming book, The Priority List

TRANSCRIPT

CELESTE HEADLEE, HOST:

This is TELL ME MORE from NPR News. I’m Celeste Headlee. Michel Martin is away. Christmas is here and later in the program, we have a special gift for you. Some of our favorite conversations of the year from translating hip-hop lyrics into sign language, to a legendary musician turning personal grief into powerful song. First, though, a teacher who’s inspiring his students less with his lesson plans and more with his life.

David Menasche taught English in a Miami high school for years. But as he approached the final stages of terminal brain cancer, Menasche decided it was time to hit the road. He spent more than a hundred days traveling hundreds of miles by train and car visiting some of his former students. And he wrote about the journey in a upcoming book called, “The Priority List: A Teacher’s Final Quest to Discover Life’s Greatest Lessons.” And he joins me now. David, welcome to the program.

DAVID MENASCHE: Thank you, Celeste.

HEADLEE: It wasn’t after you got diagnosed that you decided to go on this trip. What’s shocked me a bit was that it was after you’d actually lost a large…

MENASCHE: Exactly.

HEADLEE: …Portion of your vision when it would be the hardest – the most difficult, it seems to be, to go traveling. Why then?

MENASCHE: Well, it wasn’t the diagnosis of brain cancer that got me motivated to go on the trip. It was actually this past July 10, 2012, I suffered a stroke that took away the left side of my body and half of my vision. And at that point, I realized I couldn’t teach anymore, as I couldn’t drive. I couldn’t even get to work, much less watch a over a class of 30 students. So bored, frustrated and feeling purposeless, I decided to take a trip to go visit my former students. So I put a post on Facebook, and within 48 hours, I had offers in 50 different cities, which led to a trip of over 8,000 miles, 75 different students and different couches, over 101 days, and as you said, a book.

HEADLEE: So did you basically decide to visit each student that invited you on Facebook? Or did you…

MENASCHE: Yes.

HEADLEE: …Pick and choose?

MENASCHE: No, my intention was to go see every single one of them, but unfortunately, because of circumstances – you know, kids get sick, people get pulled out of town, things like that happen – I didn’t get to see every single one of the students that I had got an offer from. But I did get the lion’s share of it. Making it all the way to the Pacific Ocean for the first time for me.

HEADLEE: So the question you were asking these students was what kind of impact did I have on your life, right?

MENASCHE: I wanted to know if I made a difference.

HEADLEE: Do you think you were able to get an honest answer from them? I mean, I would imagine that with you sitting right in front of them…

MENASCHE: Absolutely. I had quite a few students tell me, oh, I hated your class. You put me on the spot all of the time. I never felt prepared. But, you know, at the same time, I would ask them, did that in any way help you? And very frequently the answer would be yes.

You know, that being forced to think on their feet, being forced to answer questions ultimately was a benefit. But no, not all of them were, you know, just fawning over me, which was good because that’s what I wanted was an honest answer. But for the most part, I got a range within each one of them where they would say, this part of the class was amazing. This other part of the class, I could’ve done without.

Read more: http://www.npr.org/2013/12/25/256874611/sorting-priorities-after-a-cancer-diagnosis

A Woman’s Final Months Told Through Twitter

The Incredible Story Of A Woman’s Final Months Fighting Brain Cancer As Told Through Her Tweets

Source: http://www.buzzfeed.com/ryanhatesthis/the-incredible-story-of-a-womans-final-months-fighting-brain

Such a Touching Story

Boss sells restaurant he has owned for 17 years to pay medical costs for employee, 19, with brain tumor

A generous boss is selling the restaurant he has owned for 17 years to help a 19-year-old employee suffering from a brain tumor.

Brittany Mathis, whose father died suddenly from a brain tumor when she was just a child, was diagnosed last month – but does not have health insurance to cover the costs of her treatment.

Now Michael De Beyer, the German-born owner of Kaiserhof Restaurant and Wunderbar in Montgomery, Texas, has offered to sell his life’s work to help the young server.

‘I’m not able to just sit by and let it happen,’ he told the Montgomery Courier. ‘I couldn’t live with myself; I would never be happy just earning money from my restaurant knowing that she needs help.’

Read more: http://www.dailymail.co.uk/news/article-2535229/Boss-sells-restaurant-owned-17-years-save-employee-19-tumor.html